Last November, we launched our prototype of Apart of Me - the interactive game providing hope and resilience to young people and families when a parent is dying. We gave the game to a broad group of young people, parents, and professionals to test. The results came in at the start of this year, and we are very pleased to share with you the results and some lessons we have learned from this process.
First, the results:
Our user-testers gave an average answer of 7. 4 out of 10 when asked how likely they were to recommend Apart of Me to a family where someone has a life-limiting illness?’ This rose to 8.1 if certain planned improvements were to be made.
We are overjoyed with this feedback, as this tells us we are clearly on the right track, and that the game as it stands is already offering great value to young people in this situation.
We also learned from in-app analytics that around 50% of all ours users, across iOS and Android, were actively using the prototype one month after they had first installed it.
This again was very good news for us, as it indicates that Apart of Me offers value to users over time.
Finally, we got some really encouraging bits of feedback, and lots of constructive criticism which we are now excited about feeding into Phase 2.
Here is a sample of the feedback from our user-testers:
If we’d had this game available to us when my wife was still alive…she would have enjoyed helping our son create a memory box and having set tasks to do would’ve made this daunting task more manageable for her. – Mandy, widow and mother of 2 boys
This game is bloomin’ fantastic – April Shipton, Fundraising and Marketing Officer, Hope Matters
What’s amazing and unique about AOM is children can create a legacy alongside their ill family member… it provides a fun, interactive way to prompt and bridge conversations which can sometimes be extremely difficult to do, also creating a digital resource that will be invaluable for future generations. – Olly Clabburn, PHD, Lost a parent to MND. Investigating the use of digital legacies for people living with motor neurone disease
So, what are the key lessons we have learned so far?
We were lucky to have been able to run a series of focus groups before developing Apart of Me. In these focus groups, we gave a few example apps to young people and asked them to play with them and give us feedback. We quickly realised that unless there was a game element, they were very unlikely to keep using it. But when we were building the prototype, we could only be sure that what we had created was working when we put it in the hands of our young users and watched them play.
We always knew when embarking on this journey that we wanted users to interact with their family in more open, healthy ways. But we knew that for young users (and plenty of adults) starting with a digital tool was a good way of doing this. We have enough evidence now from Phase 1, specifically through the ‘Messages In Bottles’ function on the island, that it is not only possible, but actually really very exciting to encourage families to interact with each other more in real-life, prompted by a digital tool. Improving this will be a key fearure of Phase 2.
Death is a complicated area. There is still a great deal of taboo around death, and this makes it harder to talk openly about. This also made it challenging to find relevant user-testers. In the end, through a combination of intensive social media activity and persistent networking we pulled together a highly relevant group of testers.
Although death has been a taboo subject, during the last 2 years we have connected with some amazing, and inspiring projects doing work in this area. Here are some of our favourites:
Jon Underwood’s Death Cafe. We had the pleasure to chat with Jon about the game (which he was really excited about) and to learn more about his Death Cafe movement. At a Death Cafe people, often strangers, gather to eat cake, drink tea and discuss death. Their objective is ‘to increase awareness of death with a view to helping people make the most of their (finite) lives’.
Life. Death. Whatever. We loved connecting with Anna Lyons and Louise Winter at their wonderful Life DEath Whatever exhibition. It was very encouraging to see such a creative, and playful approach to exploring death.
Ivor Williams’ Cove. Ivor has become a good friend of ours over the last year, and we are honoured to have his company. Ivor is a brilliant designer who created Cove, the musical app to support young people through bereavement.
Hope Support Services, a fantastic charity doing loads of amazing work supporting young people when someone in the family has a life-threatening illness. We are currently in some very exciting discussions about our partnership with them. Watch this space.
Our next phase of development is going to concentrate on four key aspects:
Thanks for reading! For more details about the project see the Apart of Me page.
You donation will help us provide Apart of Me to as many people as possible. Make a contribution, securely via MyDonate.
Apart of Me is a restricted fund under auspices of Prism the Gift Fund, reg. charity 1099682
We're always grateful to have volunteers who can help us with our mission. If you have skills in fundraising, marketing, UX or games development or if you think you can help us in anyway please visit our volunteering page.
We're actively looking for people who are happy to share their stories of loss or bereavement, particularly if it relates to loss of a parent or sibling at a young age.
We are building a library of stories which will be available and searchable from within our app, share your story to find out more.
You can help a lot by promoting our campaign by sharing it with your friends on social media or any other way you see fit!